Meta Consent – A Flexible Solution to the Problem of Secondary Use of Health Data

In this article we provide an in-depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data...

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Autori: Ploug, Thomas (Autore) ; Holm, Søren 1901-1971 (Autore)
Tipo di documento: Elettronico Articolo
Lingua:Inglese
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Pubblicazione: Wiley-Blackwell [2016]
In: Bioethics
Anno: 2016, Volume: 30, Fascicolo: 9, Pagine: 721-732
Notazioni IxTheo:NCH Etica della medicina
NCJ Etica della scienza
Altre parole chiave:B meta consent
B Informed Consent
B specific consent
B broad consent
B health data
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Riepilogo:In this article we provide an in-depth description of a new model of informed consent called ‘meta consent’ and consider its practical implementation. We explore justifications for preferring meta consent over alternative models of consent as a solution to the problem of secondary use of health data for research. We finally argue that meta consent strikes an appropriate balance between enabling valuable research and protecting the individual.
ISSN:1467-8519
Comprende:Enthalten in: Bioethics
Persistent identifiers:DOI: 10.1111/bioe.12286