A Trust-Based Pact in Research Biobanks. From Theory to Practice
Traditional Informed Consent is becoming increasingly inadequate, especially in the context of research biobanks. How much information is needed by patients for their consent to be truly informed? How does the quality of the information they receive match up to the quality of the information they ou...
| Authors: | ; ; ; ; ; ; ; |
|---|---|
| Tipo de documento: | Recurso Electrónico Artigo |
| Idioma: | Inglês |
| Verificar disponibilidade: | HBZ Gateway |
| Journals Online & Print: | Carregar...
|
| Fernleihe: | Fernleihe für die Fachinformationsdienste |
| Publicado em: |
Wiley-Blackwell
[2016]
|
| Em: |
Bioethics
Ano: 2016, Volume: 30, Número: 4, Páginas: 260-271 |
| Classificações IxTheo: | KBJ Itália NCH Ética da medicina NCJ Ética da ciência TK Período contemporâneo |
| Outras palavras-chave: | B
Consent
B pact B Research B Banco de biomaterial B Trust |
| Acesso em linha: |
Presumably Free Access Volltext (Verlag) Volltext (doi) |
| Resumo: | Traditional Informed Consent is becoming increasingly inadequate, especially in the context of research biobanks. How much information is needed by patients for their consent to be truly informed? How does the quality of the information they receive match up to the quality of the information they ought to receive? How can information be conveyed fairly about future, non-predictable lines of research? To circumvent these difficulties, some scholars have proposed that current consent guidelines should be reassessed, with trust being used as a guiding principle instead of information. Here, we analyse one of these proposals, based on a Participation Pact, which is already being offered to patients at the Istituto Europeo di Oncologia, a comprehensive cancer hospital in Milan, Italy. |
|---|---|
| ISSN: | 1467-8519 |
| Obras secundárias: | Enthalten in: Bioethics
|
| Persistent identifiers: | DOI: 10.1111/bioe.12184 |