RT Article
T1 ‘YOU DON'T MAKE GENETIC TEST DECISIONS FROM ONE DAY TO THE NEXT’– USING TIME TO PRESERVE MORAL SPACE
JF Bioethics
VO 21
IS 4
SP 208
OP 217
A1 Scully, Jackie Leach
A1 Porz, Rouven
A1 Rehmann-Sutter, Christoph
LA English
PB Wiley-Blackwell
YR 2007
UL https://www.ixtheo.de/Record/1781880360
AB The part played by time in ethics is often taken for granted, yet time is essential to moral decision making. This paper looks at time in ethical decisions about having a genetic test. We use a patient-centred approach, combining empirical research methods with normative ethical analysis to investigate the patients' experience of time in (i) prenatal testing of a foetus for a genetic condition, (ii) predictive or diagnostic testing for breast and colon cancer, or (iii) testing for Huntington's disease (HD). We found that participants often manipulated their experience of time, either using a stepwise process of microdecisions to extend it or, under the time pressure of pregnancy, changing their temporal ‘depth of field’. We discuss the implications of these strategies for normative concepts of moral agency, and for clinical ethics.
K1 Ethics
K1 Qualitative Research
K1 Decision Making
K1 Cancer
K1 Huntington's disease
K1 prenatal testing
K1 genetic testing
DO 10.1111/j.1467-8519.2007.00546.x