Consent and Assent to Participate in Research from People with Dementia

Conducting research with vulnerable populations involves careful attention to the interests of individuals. Although it is generally understood that informed consent is a necessary prerequisite to research participation, it is less clear how to proceed when potential research participants lack the c...

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Bibliographic Details
Authors: Slaughter, Susan (Author) ; Cole, Dixie (Author) ; Jennings, Eileen (Author) ; Reimer, Marlene A (Author)
Format: Electronic Article
Language:English
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Fernleihe:Fernleihe für die Fachinformationsdienste
Published: Sage 2007
In: Nursing ethics
Year: 2007, Volume: 14, Issue: 1, Pages: 27-40
Further subjects:B Informed Consent
B research ethics
B Dementia
B Assent
Online Access: Volltext (lizenzpflichtig)
Description
Summary:Conducting research with vulnerable populations involves careful attention to the interests of individuals. Although it is generally understood that informed consent is a necessary prerequisite to research participation, it is less clear how to proceed when potential research participants lack the capacity to provide this informed consent. The rationale for assessing the assent or dissent of vulnerable individuals and obtaining informed consent by authorized representatives is discussed. Practical guidelines for recruitment of and data collection from people in the middle or late stage of dementia are proposed. These guidelines were used by research assistants in a minimal risk study.
ISSN:1477-0989
Contains:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/0969733007071355