Consent and Assent to Participate in Research from People with Dementia

Conducting research with vulnerable populations involves careful attention to the interests of individuals. Although it is generally understood that informed consent is a necessary prerequisite to research participation, it is less clear how to proceed when potential research participants lack the c...

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Главные авторы: Slaughter, Susan (Автор) ; Cole, Dixie (Автор) ; Jennings, Eileen (Автор) ; Reimer, Marlene A (Автор)
Формат: Электронный ресурс Статья
Язык:Английский
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Fernleihe:Fernleihe für die Fachinformationsdienste
Опубликовано: Sage 2007
В: Nursing ethics
Год: 2007, Том: 14, Выпуск: 1, Страницы: 27-40
Другие ключевые слова:B Informed Consent
B research ethics
B Dementia
B Assent
Online-ссылка: Volltext (lizenzpflichtig)
Описание
Итог:Conducting research with vulnerable populations involves careful attention to the interests of individuals. Although it is generally understood that informed consent is a necessary prerequisite to research participation, it is less clear how to proceed when potential research participants lack the capacity to provide this informed consent. The rationale for assessing the assent or dissent of vulnerable individuals and obtaining informed consent by authorized representatives is discussed. Practical guidelines for recruitment of and data collection from people in the middle or late stage of dementia are proposed. These guidelines were used by research assistants in a minimal risk study.
ISSN:1477-0989
Второстепенные работы:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/0969733007071355