Working with Children in End-of-Life Decision Making

Traditionally, physicians and parents made decisions about children’s health care based on western practices. More recently, with legal and ethical development of informed consent and recognition for decision making, children are becoming active participants in their care. The extent to which this i...

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Authors: Whitty-Rogers, Joanne (Author) ; Alex, Marion (Author) ; MacDonald, Cathy (Author) ; Pierrynowski Gallant, Donna (Author) ; Austin, Wendy (Author)
Tipo de documento: Recurso Electrónico Artigo
Idioma:Inglês
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Publicado em: Sage 2009
Em: Nursing ethics
Ano: 2009, Volume: 16, Número: 6, Páginas: 743-758
Outras palavras-chave:B children’s autonomy
B nurses’ role
B best interests
B relational ethics
B end-of-life care
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Descrição
Resumo:Traditionally, physicians and parents made decisions about children’s health care based on western practices. More recently, with legal and ethical development of informed consent and recognition for decision making, children are becoming active participants in their care. The extent to which this is happening is however blurred by lack of clarity about what children — of diverse levels of cognitive development — are capable of understanding. Moreover, when there are multiple surrogate decision makers, parental and professional conflict can arise concerning children’s ‘best interest’. Giving children a voice and offering choice promotes their dignity and quality of life. Nevertheless, it also presents with many challenges. Case studies using pseudonyms and changed situational identities are used in this article to illuminate the complexity of ethical challenges facing nurses in end-of-life care with children and families.
ISSN:1477-0989
Obras secundárias:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/0969733009341910