An exploratory study of dignity in dementia care

Background:Generally, a person with dementia may be unable to make decisions by themselves and professionals may decide what is best for them. Unfortunately, in most cases, professionals assist a person with dementia to make decisions without clear explanation or consent. Whether a person with demen...

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Autores principales: Huang, Ya Chi (Autor) ; Lei, Ruoh Lih (Autor) ; Lei, Ruo Wan (Autor) ; Ibrahim, Faizal (Autor)
Tipo de documento: Electrónico Artículo
Lenguaje:Inglés
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Publicado: Sage 2020
En: Nursing ethics
Año: 2020, Volumen: 27, Número: 2, Páginas: 433-445
Otras palabras clave:B Dignity
B Taiwan
B Lived experience
B healthcare professionals
B dementia care
Acceso en línea: Volltext (lizenzpflichtig)
Descripción
Sumario:Background:Generally, a person with dementia may be unable to make decisions by themselves and professionals may decide what is best for them. Unfortunately, in most cases, professionals assist a person with dementia to make decisions without clear explanation or consent. Whether a person with dementia possesses dignity in routine care is an important issue.Research objectives:The purpose of this study was to explore the lived experience of the healthcare professionals in providing dignified dementia care in Taiwan.Research design:A qualitative, hermeneutic-phenomenological approach was conducted.Participants:Participants were enrolled by purpose sampling. Researchers performed in-depth interviews to reveal the essential ingredient of dignity within dementia care in Taiwan. A total of 20 cases were enrolled to achieve data saturation.Ethical considerations:This study was approved by the institutional review board. Before conducting the interview, interviewees provided informed consent.Findings:There were three themes and six categories that were addressed and constructed; within the themes, 23 Guidelines for Taiwan Dignified Dementia Care and 12 Principles for Dignified Dementia Care in Taiwan were developed.Discussion:From the data relating to dignity in dementia care, we can develop a more independent and dignified care environment to improve the quality of life of person with dementia in Taiwan.Conclusion:The results indicated that dignity within dementia care was constructed by the lived experience of the healthcare professionals, as well as affected by the culture of the organizations and society at the same time.
ISSN:1477-0989
Obras secundarias:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/0969733019849458